We met a fantastic Urologist today. She took the time we needed, answered our questions and helped us make what I believe is a great decision about what to do next.
Ginny has not slept for more than 2 hours in one sitting for almost a year. Her urinary system is a mess. She currently has a nephrostomy tube and drainage system. They put a new on in on Tuesday. These are exchanged every 10 weeks.
For those of you who are curious...
This first pic is what Gin currently has. A nephrostomy tube that drains her right kidney.
This next pic is what we are going to try next. A nephroureterostomy catheter. This is a longer catheter that enters the kidney and travels all the way to the bladder. The idea is that this will draw all of her urine out via her nephew bag and take the pressure off the bladder. So instead of waiting 10 weeks, Gin is scheduled to go back October 31st to have the longer tubing placed. This is contingent on the team being able to get through the ureter. This area is impacted by the tumor and is where Gin had stents placed in the past. So fingers crossed.
Gin is also being treated for a fluid build up in her lungs. I truly believe that once these items are taken care of that she will feel better and she will stabilize.
Kir
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